Network introduction in Rare

A new article introducing the network aims to (1) provide transparency about our activities to the international ChiCaP community, (2) offer a reproducible framework that other regions might adapt to their local contexts, (3) identify opportunities for international collaboration, and (4) demonstrate how to leverage regional strengths.

Published on November 1st, it positions the network as an interdisciplinary research–clinical collaboration, functioning both as a research infrastructure and a translational platform. Sharing a collaborative and outward-looking stance, its members seek joint efforts to harmonize and improve care of patients and families with a ChiCaP. The article also gives an overview of the working groups and ongoing research projects connected to the network.

“By joining forces, we can drive large-scale research projects that explore various aspects of ChiCaP, from genetic underpinnings to clinical management, surveillance, psychosocial, ethical, and legal considerations. This collaborative approach will enable a more comprehensive understanding of ChiCaP syndromes and help to improve patient outcomes across borders.”

Rare
The Nordic ChiCaP Network: An Interdisciplinary Approach to Childhood Cancer Predisposition